We are excited to announce that the CDCN hosted a Patient Education Webinar on Friday, August 3, 2018 at 10AM EST. The webinar was led by Dr. Frits van Rhee, Co-Founder of the CDCN and Co-Chair of the CDCN Scientific Advisory Board. Dr. van Rhee is a leading expert on the treatment of Castleman disease.

CDCN volunteer Nadine Eltouhky gathered frequently asked questions from social media, the RareConnect Patient Community, and our patient driven research platform. The CDCN uses this information about the most important questions to guide the research studies that we perform and to ensure that we're providing the best support we can for the community.

Dr. van Rhee addressed the most frequently asked patient and loved one questions including:

  • General information on Castleman disease
  • Symptom management
  • Treatment options
  • Side effects

To watch the recorded webinar, click here.

Please email info@castlemannetwork.org if you have any questions or if there is anything that we can help with.