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Welcome to your Castleman disease home. Castleman disease is a journey for patients and all those that they love that begins with a difficult diagnosis, followed by finding a specialist, choosing a treatment, recovering, and surviving. You don't have to face this alone - we're here to help! The CDCN and this site exists to provide resources and information to help you and/or your loved one effectively navigate each step of the journey.

 

Ways to Fight Back After a Diagnosis:  

 

 1.   LEARN ABOUT CASTLEMAN DISEASE

Get easy to understand information about Castleman disease diagnosis, classification, symptoms and treatment. Read more »

2.   FIND A TOP TREATING PHYSICIAN

The CDCN has assembled a global database of physicians who are experienced at treating Castleman disease. Find a physician near you and make an appointment! Read more » 

3.  KNOW YOUR DISEASE

Track your abnormal labs so that you can monitor your blood for signs of a new flare. Read more »

Alert the CDCN if you are hospitalized or experiencing a flare - Call (610) 304-0696

4.  SEEK SUPPORT

Connect with other patients and loved ones on Facebook:
CDCN Facebook page
International Castleman Disease Organization

Attend the CDCN's Annual Patient and Loved One Summit. Register today »

Attend, sponsor, or donate to the CDCN's annual Quest for a Cure Gala fundraiser! Click here » 

 5.   JOIN THE CDCN COMMUNITY

To get and show support for other Castleman disease patients and loved ones, and to gain access to all of the information and resources the CDCN has to offer! Fill out a short form to join CDCN Online Community as a patient or loved one so that you can gain access to all available information and resources, including our Patient Navigation services! Click here »

 

Pursue Opportunities to Join the Fight -- Help us help you! 

 

 

6.   SHARE YOUR CASTLEMAN DISEASE DATA

ACCELERATE is the first-ever global patient registry of Castleman disease! It is designed to collect medical and patient-reported information about CD so that we can gain insights into the disease. It’s one of the great opportunities we have to unlock the mysteries of Castleman disease and how to treat it. Enroll here » 

7.   DONATE TISSUE SAMPLES FOR RESEARCH

Because Castleman disease is so poorly understood, blood samples - especially from those patients that are in flare - and lymph node tissue are very important for research. The CDCN is conducting dozens of studies of CD samples to answer the unknowns of the disease. Click here to express interest in sample donation »

Call 267-586-9977 or email biobank@uphs.upenn.edu if you are hospitalized, experiencing a relapse, or expect to have a lymph node surgically resected.

 8.   BECOME A CASTLEMAN WARRIOR!

To join the fight against Castleman disease, you can become a Castleman Warrior to work alongside fellow patients and loved ones by raising awareness and funds in your own community. We have monthly calls to discuss ideas and support one another. You get your own fundraising page for CD research. Learn more »

Email Mileva Repasky (mileva@castlemannetwork.org) to be connected with a Patient and Loved One Ambassador. 

 9.   DONATE FUNDS FOR HIGH IMPACT RESEARCH!

The important studies we are performing on CD samples are very expensive. Donations to the CDCN go directly towards funding life-saving Castleman disease research projects. Donate today »

  10.   LET US KNOW HOW WE CAN HELP

Email info@castlemannetwork.org or call (610) 304-0696.