Castleman disease is a journey for patients and all those that they love that begins with a difficult diagnosis, followed by finding a specialist, choosing a treatment, recovering, and surviving. The CDCN and this site exist to provide resources and information to help you and/or your loved one effectively navigate each step of the journey. Read about out how Castleman disease patients and loved ones are fighting back against this disease here. Together, we will beat this disease.
A checklist for patients and loved ones:
Castleman patients and their loved ones can help cure the disease in 3 ways: raising awareness, raising funds for research, and contributing their patient information to the CDCN ACCELERATE Patient Research Study. Enroll here »
Interested in getting your samples sent to us for use in high-impact research studies? Learn more and fill out a quick survey to let us know what your doctors might have available. Click here »
Raise funds for CDCN research to help unlock the mysteries of Castleman disease! Donate today »
Fill out a short form to join CDCN Online Community as a patient or loved one so that you can gain access to all available information and resources. Click here »
Castleman Warriors help organize their communities to raise awareness and funds to fight back against the disease. Learn more »
Email Mileva Repasky (firstname.lastname@example.org) to be connected with a Patient and Loved One Ambassador.
Sign up for our newsletter so that you can follow our progress. Click here »
Get easy to understand information about Castleman disease diagnosis, classification, symptoms and treatment. Read more »
The CDCN has assembled a global database of physicians who are experienced at treating Castleman disease. Find a physician near you and make an appointment! Read more »
◊ KNOW YOUR DISEASE
Track your abnormal labs so that you cna monitor your blood for signs of a new flare. Read more »
Take a look at Castleman disease research articles and share the list of resources with your physician. Read more »
Attend the CDCN's Annual Patient and Loved One Summit. Learn more »
Attend the Patient and Loved One Summit! Register today »
Attend, sponsor, or donate to the CDCN's annual Quest for a Cure Gala fundraiser! Click here »
Meet, ask questions, and share experiences with other patients and loved ones using the RareConnect patient forum. Read more »
Gain access to a patient driven site that allows you to post questions about the disease to make sure that our research is geared towards answering them. Sign up here »
◊ LET US KNOW HOW WE CAN HELP
Email email@example.com or call (610) 304-0696.
The CDCN is proud to have connected with over 10,000 patients and their loved ones since 2012. Although having a rare disease can be isolating, the CDCN is working hard to foster a global community of patients. Check out the CDCN community of Castleman disease patients around the world!
Patient Lisa Verboomen from Seattle, WA shares her experience with Castleman disease at the first-ever "Beating Castleman's, Together" Summit, hosted by the CDCN:
Chris Kimura from Sandy Oak, CA talks about his experiences with multicentric Castleman disease at the "Beating Castleman's, Together" Summit: