Annual American Society of Hematology Meeting

From December 8-11, 2017, the CDCN team traveled to Atlanta, GA for the Annual American Society of Hematology (ASH) Meeting. They were able to both attend and present at poster sessions, as well as host four different… READ MORE


Forbes 2017 Healthcare Summit

On November 30, 2017, Dr. Fajgenbaum traveled to New York City to share his story at the Forbes Healthcare Summit. The Summit focused on presenting the spectrum of healthcare - from business and economics to research … READ MORE


The Third Annual Quest for a Cure

On November 10, 2017, CDCN friends and family gathered at the Mütter Museum of the College of Physicians in Philadelphia for the Third Annual Quest for a Cure Gala.  The night was filled with signature cock… READ MORE


Fourth Annual Patient and Loved One Summit

On September 15-16, 2017 over 60 patients and their loved ones gathered with members of the CDCN at the University of Pennsylvania in Philadelphia for the Fourth Annual Patient and Loved Ones Summit. On Friday pati… READ MORE


ACCELERATE Study Welcomes Two New Full-Time Employees

The CDCN is delighted to announce the addition of two full-time Data Specialists for the ACCELERATE Patient Research Study at the University of Pennsylvania. ACCELERATE is the first-ever global patient … READ MORE


CDCN Partnering with Janssen to Perform Proteomics Study

On April 11, 2017, the CDCN announced a collaboration with Janssen Research & Development, LLC, to conduct a proteomics study of idiopathic multicentric Castleman disease (iMCD). The Press Release in Business… READ MORE


Will you join us? Remembering the 2016 Patient Summit

The 2016 "Beating Castleman's, Together" Patient & Loved Ones Summit By CDCN Volunteer Alisa McDonald The CDCN Patient Summit is an opportunity for patients to gather with others affected by Castleman … READ MORE


Major Headlines about Castleman disease!

Castleman disease hit international headlines when Dr. David Fajgenbaum and the CDCN were highlighted on the cover of the NYTimes Sunday Business and in the Huffington Post! These articles are an important step to bri… READ MORE


First-ever Diagnostic Criteria and ICD-10 Code for Castleman disease!

Big strides were made recently for the diagnosis of Castleman disease patients! The first-ever diagnostic criteria for HHV-8-negative "idiopathic" Multicentric Castleman disease has been published in the top hema… READ MORE


Castleman Warriors and the ACCELERATE Patient Research Study hit National Headlines on CBS News!

Castleman Warriors Mileva Repasky, Shannon Baker and Dr. David Fajgenbaum were featured in the November 28, 2016 edition of CNS News! Doctor with rare Castleman disease works to find a cure was written by CBS News jou… READ MORE