New French reference center for Castleman disease holds launch meeting: Dr. Eric Oksenhendler, CDCN Vice Chair of Treatment Guidelines/Patient Care, at the helm

In early June 2018, a new French reference center for Castleman disease held a launch meeting in Paris,“Premiere Journee du Centre de Référence ‘Maladie de Castleman’.”  The … READ MORE

Patient Funded Research Study Reveals Critical New Information About CD

      The Castleman Disease Collaborative Network (CDCN) is proud to announce the publication of our SPEED I (Serum Proteomics Evaluation for Etiology and Pathogenesis Data I) research study in t… READ MORE

Partnership Spotlight: Janssen Research and Development, LLC.

After another great year for the CDCN in 2017, we'd like to recognize a crucial partner in the fight against Castleman disease: Janssen Research and Development, LLC. Check out members the Janssen team&nbs… READ MORE

Castleman Disease Collaborative Network Funds Four High Impact Grants!

The Castleman Disease Collaborative Network (CDCN) is excited to announce funding for four high impact research proposals! All four research projects were awarded individual grants of $42,000. Dr. David Fajgenbaum,… READ MORE

First Ever Castleman Disease Textbook

In February 2018 the first ever Castleman disease textbook was published - check out Drs. Fajgenbaum and Shilling's chapter on Castleman disease pathogenesis here. This chapter establishes the nomenclature used … READ MORE

Dr. Fajgenbaum on the TODAY Show!

On January 14, 2018, the TODAY aired a special on Dr. Fajgenbaum and his remarkable story - "Doctor with rare disease racing to save his own life". The segment highlighted the challenges faced by rare disease patients… READ MORE

Annual American Society of Hematology Meeting

From December 8-11, 2017, the CDCN team traveled to Atlanta, GA for the Annual American Society of Hematology (ASH) Meeting. They were able to both attend and present at poster sessions, as well as host four different… READ MORE

Forbes 2017 Healthcare Summit

On November 30, 2017, Dr. Fajgenbaum traveled to New York City to share his story at the Forbes Healthcare Summit. The Summit focused on presenting the spectrum of healthcare - from business and economics to research … READ MORE

The Third Annual Quest for a Cure

On November 10, 2017, CDCN friends and family gathered at the Mütter Museum of the College of Physicians in Philadelphia for the Third Annual Quest for a Cure Gala.  The night was filled with signature cock… READ MORE

Fourth Annual Patient and Loved One Summit

On September 15-16, 2017 over 60 patients and their loved ones gathered with members of the CDCN at the University of Pennsylvania in Philadelphia for the Fourth Annual Patient and Loved Ones Summit. On Friday pati… READ MORE