The CDCN hosts fundraisers, talks, patient summits, and physician meetings around the world. 
Email info@castlemannetwork.org for more information about any of the CDCN's upcoming events.
 
Upcoming Events:
Past updates:
  • Dr. Fajgenbaum and Sheila Pierson traveled to Paris to visit the New French Reference Center for Castleman Disease, led by Dr. Eric Oksenhendler. To read more about their trip, click here.
  • The CDCN is proud to announce the publication of our SPEED I (Serum Proteomics Evaluation for Etiology and Pathogenesis Data) research study in the American Journal of Hematology in April 2018! Click here to read the full announcement. 
  • Janssen Spotlight! The CDCN would like to recognize Janssen Research and Development, LLC as one of our crucial partners in the fight against Castleman disease!
  • We are happy to share that the CDCN was able to fund four high-impact research grants - click here to read more!
  • Penn Orphan Disease Center Million Dollar Bike Ride on May 20, 2018 in Philadelphia, PA
  • The CDCN was thrilled to have Castleman patient Peter Kane join us in the office for an afternoon with the team - hearing Warrior stories reminds us of why we continue working for a cure!
  • Dr. Fajgenbaum had the privelege of Warrior flex-ing with NIH director, Dr. Francis Collins, at the National Disease Research Interchance (NDRI) Service to Science dinner at the Union League of Philadelphia on February 1, 2018.
  • ACCELERATE continues to grow everyday. Interested in learning more about why you should enroll? Watch this short video today!
  • The first ever textbook on Castleman disease was published in February 2018 - check out Drs. Fajgenbaum and Shilling's chapter here
  • The CDCN was excited to have Castleman patient James Blose visit the office to meet the team - Warriors like James remind us why we keep fighting!
  • The TODAY Show aired a piece on Dr. Fajgenbaum and his continued fight against Castleman disease. 
  • Over 50 researchers and physicians from around the world joined the CDCN team at the Sixth Annual Physicians and Researchers Working Dinner on December 9, 2017.
    • Key research priorities were discussed amongst experts including a global patient Patient Research Study, patient care, and the international research agenda.
    • The CDCN would like to thank Janssen for sponsoring the dinner.
  • On December 1, 2017 Dr. Fajgenbaum shared his story with the Forbes 2017 Healthcare Summit.
  • The CDCN is thankful for Warriors who continue to work to bring awareness to Castleman disease. Laura Mayben spoke to the Gaston Gazette to tell her story.
  • On November 10, 2017, the CDCN hosted the Third Annual Quest for a Cure Gala at the Mutter Museum in Philadelphia, PA.
    • The CDCN reached our goal of raising $100,000!
  • On November 3, 2017, members of the NYC CDCN family hosted a fundraiser at Cielo in NYC to raise money and join the fight against Castleman disease!
  • Watch Dr. Fajgenbaum's feature on ABC News 11 Raleigh
  • On September 25, 2017 representatives from the CDCN and the University of Pennsylvania visited with the FDA Oncology Center for Excellence staff to discuss their efforts to find better treatments for this deadly and rare disease. 
  • Check out the new and improved CDCN Research Pipeline for the most up to date state of research. 
  • The Fourth Annual Patient and Loved One Summit was held at the Hospital of the University of Pennsylvania on September 15-16, 2017.
    • Over 60 patients and loved ones attended the Summit where they were able to meet and discuss the current state of Castleman disease with world experts including Drs. Fajgenbaum, Uldrick, and van Rhee.
    • The CDCN team, patients, and loved ones gathered on Saturday for a bus tour of historic Philadelphia.
  • Check out Dr. Fajgenbaum's appearance on PennHealthX, the Penn Medical student podcast.
  • A huge milestone for the ACCELERATE Patient Research Study on August 1, 2017 - the CDCN has consented 100 patients for participation in the study!
  • CDCN Philadelphia Professionals FUNraiser took place on July 13, 2017 at the Griffin Observatory Deck in Philadelphia, PA.
  • Dr. Fajgenbaum was proud to give a powerful speech at his undergraduate alma mater for Georgetown University's 2017 Senior Convocation.
  • Learn more about the Million Dollar Bike Ride, hosted by the Penn Medicine Orphan Disease Center Philadelphia, PA on May 20, 2017.
    • Consider making a donation to support our fundraising efforts. All donations are match dollar for dollar.
  • The CDCN is thrilled to announce a research collaboration with Janssen to conduct a Proteomics Study of iMCD! 
  • Check out Dr. Fajgenbaum's feature article in the Huffington post, "Young Doctor Diagnosed With a Death Sentence Hopes to Cure Himself - Before It's Too Late" out now!
  • On April 1, 2017, Castleman Warrior Marcey Campbell hosted Strides for Castlemans 5k/1 Mile Fun Run/Walk - read her story here!
  • Dr. Fajgenbaum had the opportunity to meet with Major General Doron Almog, from the Israel Defense Forces, to discuss the CDCN's plan of attack against Castleman disease in New York City.
    • Major General Almog has a personal connection to Castleman disease as he lost his son to Castleman disease 10 years ago. 
  • The first ever Diagnostic Criteria for iMCD, which the CDCN has been working on for the past two year, is finally here! It was published in Blood on March 23, 2017.
  • The New York Times profiled Dr. Fajgenbaum's story - and how he's used science and business - in his fight against Castleman disease. Check out "His Doctors Were Stumped. Then He Took Over." today!
  • ACCELERATE is the first-ever global patient Patient Research Study of Castleman disease! 
    • Designed to collect medical information about Castleman disease and patient-reported information to help improve our understanding and treatment of Castleman disease.
    • If you are a patient, and would like to participate, get more information here.
  • Check out Dr. Fajgenbaum's feature, and his work researching Castleman disease - on Fox 29 Philly.
  • Over the weekend of December 11, 2016, the CDCN headed out to the American Society of Hematology Conference - we are always looking to further research and find a cure!
  • Help turn promising research into permanent cures! Check out our NEW updated video about the Castleman Disease Collaborative Network!
  • Congratulations to Dr. Fajgenbaum, who was honored as a Patient Advocate at the Rare Voice Awards in Washington, DC on November 16, 2016. Dr. Fajgenbaum continues to work to give rare disease patients a voice in state and federal policy, particularly through the #OPENACT and the CDCN!
  • Participate in the CDCN's Lemon Challenge to help raise awareness for Castleman's disease - for more information visit the Facebook page
  • Quest for a Cure, at the University of Pennsylvania Jordan Medical Center, Philadelphia, PA on November 4, 2016 - watch the highlights here.
  • NYC Event to Support the CDCN, at Hudson Terrace in New York, NY on October 28, 2016.
  • Are you a Castleman disease patient? Would you like to learn more about how you can join the fight? Check out this video to see why YOU should donate samples for research!
  • McDonough Fight Night, at The Sphinx Club at Franklin Square in Washington, DC on October 7, 2016.
  • Over the summer, the CDCN asked patients to submit their questions to participate in a patient driven research initiative. Patient questions are used to make sure that our research is geared towards answering the questions that our patients are most concerned about. Dr. Fajgenbaum hosted a webinar to address some of these questions and concerns - available here now. 
  • The CDCN hosted the Patient and Loved Ones Summit in Philadelphia on October 1, 2016 - watch here!
  • We're proud to fight alongside our Castleman Warriors! Check out this article about Castleman Warrior Victoria Humphries and her continued efforts, in conjunction with the CDCN, to continue fighting Castleman disease.
  • On August 3, Dr. Fajgenbaum recieved the 2016 Pamela and Ajay Raju Foundation Young Friends of the World Affairs Council of Philadelphia Atlas Award, from the World Affairs Council of Philadelphia, to honor his achievements related to the CDCN. 
  • Dr. Fajgenbaum is profiled by Science Magazine as "a young doctor fighting his own rare, deadly disease". Read the story to learn more.
  • ElyseStrong Roar for a Cure, in Marlborough, Massachusetts, July 23, 2016
  • Want to help make a difference in rare disease research? Learn more about #OPENACT and join the fight to push this legislation through the Senate. 
  • Major milestone! As of July 12 the CDCN has connected over 10,000 patients and loved ones through RareConnect!
  • Rare Individual, Unique Fight - read Dr. Fajgenbaum's profile in Wharton magazine.
  • The CDCN was profiled in Rare Disease Report about our dedication to advancing treatment and finding a cure for Castleman disease.
  • The Penn Medicine Orphan Disease Center Million Dollar Bike Ride  in Philadelphia, PA on May 7, 2016
  • On February 28, 2016, Dr. Fajgenbaum gave the keynote at a Medidata Solutions event where he speaks about "living in overtime".
  • Talk by Dr. David Fajgenbaum "Using Business Principles to Cure Disease: A Penn Med/Wharton Alum's Journey to Cure His Disease and Dozens More" hosted by the Wharton Alumni Club of NYC: November 9, 2015.
  • Inaugural CDCN Gala and diagnostic criteria meeting in Philadelphia, PA:November 20-21 2015 (more information here)
  • "Beating Castleman's, Together" Patient and loved one Castleman Disease summit in Orlando, Florida: December 4th, 2015 Click here for more information.
  • Annual "Accelerating Research & Treatments for CD" physician and researcher meeting during ASH 2015 in Orlando, Florida: December 5th, 2015 Click here for more information.