Castleman Warriors Mileva Repasky, Shannon Baker and Dr. David Fajgenbaum were featured in the November 28, 2016 edition of CNS News! Doctor with rare Castleman disease works to find a cure was written by CBS News journalist Brian Mastroianni.

The story highlights Dr Fajgenbaum's journey as a Castleman disease patient and physician-scientist as he works to find a cure for Castleman disease. Mileva, mother of our youngest Castleman Warrior, and Shannon, Castleman Warrior, also share their journeys as mothers affected by Castleman disease and why they participate in the CDCN's research efforts. To read the full article, please visit: To learn more about or enroll in the ACCELERATE Natural History Registry, please visit


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