CDCN Research Identifies Lab Tests Predictive of Siltuximab Response in iMCD

The Castleman Disease Collaborative Network (CDCN) is excited to announce the recent publication of a study that identified key laboratory markers that help to predict whether patients with idiopathic multicentric Cas… READ MORE


Fifth Annual Patient & Loved One Summit

The 2018 Patient and Loved One Summit was a hit! The fifth annual summit took place on September 21-22, 2018 at the University of Pennsylvania and brought together over 90 patients, loved ones, and CDCN volunte… READ MORE


First-Ever Treatment Guidelines for Idiopathic Multicentric Castleman Disease!

With the CDCN's leadership, another major milestone has been achieved in the fight against Castleman Disease! The CDCN convened 42 experts from 10 different countries to establish the first-ever tr… READ MORE


New French reference center for Castleman disease holds launch meeting: Dr. Eric Oksenhendler, CDCN Vice Chair of Treatment Guidelines/Patient Care, at the helm

In early June 2018, a new French reference center for Castleman disease held a launch meeting in Paris,“Premiere Journee du Centre de Référence ‘Maladie de Castleman’.”  The … READ MORE


Patient Funded Research Study Reveals Critical New Information About CD

      The Castleman Disease Collaborative Network (CDCN) is proud to announce the publication of our SPEED I (Serum Proteomics Evaluation for Etiology and Pathogenesis Data I) research study in t… READ MORE


Partnership Spotlight: Janssen Research and Development, LLC.

After another great year for the CDCN in 2017, we'd like to recognize a crucial partner in the fight against Castleman disease: Janssen Research and Development, LLC. Check out members the Janssen team&nbs… READ MORE


Castleman Disease Collaborative Network Funds Four High Impact Grants!

The Castleman Disease Collaborative Network (CDCN) is excited to announce funding for four high impact research proposals! All four research projects were awarded individual grants of $42,000. Dr. David Fajgenbaum,… READ MORE


First Ever Castleman Disease Textbook

In February 2018 the first ever Castleman disease textbook was published - check out Drs. Fajgenbaum and Shilling's chapter on Castleman disease pathogenesis here. This chapter establishes the nomenclature used … READ MORE


Dr. Fajgenbaum on the TODAY Show!

On January 14, 2018, the TODAY aired a special on Dr. Fajgenbaum and his remarkable story - "Doctor with rare disease racing to save his own life". The segment highlighted the challenges faced by rare disease patients… READ MORE


Annual American Society of Hematology Meeting

From December 8-11, 2017, the CDCN team traveled to Atlanta, GA for the Annual American Society of Hematology (ASH) Meeting. They were able to both attend and present at poster sessions, as well as host four different… READ MORE