Fourth Annual Patient and Loved One Summit

On September 15-16, 2017 over 60 patients and their loved ones gathered with members of the CDCN at the University of Pennsylvania in Philadelphia for the Fourth Annual Patient and Loved Ones Summit. On Friday pati… READ MORE

ACCELERATE Registry Welcomes Two New Full-Time Employees

The CDCN is delighted to announce the addition of two full-time Data Specialists for the ACCELERATE patient registry at the University of Pennsylvania. ACCELERATE is the first-ever global patient registry and natural … READ MORE

CDCN Partnering with Janssen to Perform Proteomics Study

On April 11, 2017, the CDCN announced a collaboration with Janssen Research & Development, LLC, to conduct a proteomics study of idiopathic multicentric Castleman disease (iMCD). The Press Release in Business… READ MORE

Will you join us? Remembering the 2016 Patient Summit

The 2016 "Beating Castleman's, Together" Patient & Loved Ones Summit By CDCN Volunteer Alisa McDonald The CDCN Patient Summit is an opportunity for patients to gather with others affected by Castleman … READ MORE

Major Headlines about Castleman disease!

Castleman disease hit international headlines when Dr. David Fajgenbaum and the CDCN were highlighted on the cover of the NYTimes Sunday Business and in the Huffington Post! These articles are an important step to bri… READ MORE

First-ever Diagnostic Criteria and ICD-10 Code for Castleman disease!

Big strides were made recently for the diagnosis of Castleman disease patients! The first-ever diagnostic criteria for HHV-8-negative "idiopathic" Multicentric Castleman disease has been published in the top hema… READ MORE

Castleman Warriors and the ACCELERATE Registry hit National Headlines on CBS News!

Castleman Warriors Mileva Repasky, Shannon Baker and Dr David Fajgenbaum were featured in the November 28, 2016 edition of CNS News! Doctor with rare Castleman disease works to find a cure was written by CBS News jour… READ MORE

Second Annual Quest for a Cure Gala Raises Over $100,000 for research!

On November 4, 2016, about 300 people attended the Quest for a Cure gala, including about 60 patients and loved ones visiting Philadelphia for the 2016 Patient and Loved Ones Summit. Attendees enjoyed food, drinks, mu… READ MORE

The 2016 "Beating Castleman's, Together" Patient & Loved Ones Summit

The third annual Patient and Loved Ones Summit was our biggest summit yet!   On November 4-5, 2016, over 50 patients and loved ones traveled to Philadelphia from around the world, from all over the … READ MORE

Presenting the 2016 Castleman Warrior Awards!

At the 2016 Quest for a Cure Gala, the CDCN honored five people who embody the CDCN spirit with Castleman Warrior Awards. Each award winner was nominated by members of the CDCN community and were voted in by… READ MORE