Thanks for visiting the CDCN--we're a global network of physicians, researchers, patients and loved ones dedicated to accelerating research/treatment development for Castleman disease and supporting patients through their journey.

We have offices in Paso Robles, CA and Philadelphia, PA. Sophia Parente, Chief of Staff and Biomedical Leadership Fellow, is available Monday through Friday (9am-6pm EST) to assist patients, loved ones, physicians, and researchers with any questions you may have. You can reach Sophia through phone (610-304-0696) or email (


610-304-0696, Available Monday through Friday from 9am-6pm EST



By Email


Castleman’s Awareness & Research Effort
P.O. Box 3614
Paso Robles, CA 93447

Questions regarding CDCN press? 

Please reach out to Greta ( and Alisa (

Do you prefer to speak with someone in Spanish or Hebrew?

If so, you can email Ilana Refaeli (, who is a medical translator that has volunteered to help Castleman disease patients! More info about Ilana at:

If you would like more information about CDCN and the services we provide, please complete the information below.

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