The Castleman Disease Collaborative Network (CDCN) is a global initiative dedicated to accelerating research and treatment for Castleman disease (CD) to improve survival for all patients with CD. We work to achieve this by facilitating collaboration among the global research community, mobilizing resources, strategically investing in high-impact research, and supporting patients and their loved ones.

CD describes a group of inflammatory disorders that vary from a single enlarged lymph node to life-threatening multiple organ failure. CD is diagnosed in approximately 6,500 to 7,700 patients of all ages each year in the U.S.

The CDCN accomplishes this mission by focusing on four strategic areas:


Developing and executing a strategic research plan to facilitate, conduct, fund, and support high-impact CD research


Uniting the community of physicians, researchers, patients, and industry through annual meetings, online forums, and collaborative partnerships


Facilitating patient-led events to raise awareness and funding for CD


Providing an online forum for support and the most up-to-date information about CD patient care