Million Dollar Bike Ride 2019
This years ride is June 8th 2019. Ride starts at 7:30m.
The CDCN has an annual event in Philadelphia, The Castleman Warriors' Ride to a Cure, which is a part of The Penn Medicine Orphan Disease Center's "Million Dollar Bike Ride". Team Castleman Disease will be riding and raising funds to further our research in our quest for a cure. This research will continue to help those lives impacted with Castleman Disease. We hope you can join us or donate to this event.
To join our team and learn more about the Million Dollar Bike ride, please register here. If you register with fundraising, please be sure to select” Team Castleman Disease” when you are asked to select a disease team. Please share these links with your family and friends to help us reach our goal. If you are not interested in being a rider this year, you can also donate to support Team Castleman Disease. All donations will be matched 100% by Penn’s Orphan Disease Center. Penn will match dollar for dollar, so that we can double our research impact from funds raised through this ride. Making our goal of $30,000 will help funding for our THIRD research grant. For more information, or to join/donate to the CDCN Ride to a Cure team, visit our Penn Giving page here.
Below are more details about the Million Dollar Bike Ride and the ways to participate:
~ DONATE through the above website ~ Commit to help us raise money and awareness for Castleman Disease. No matter how much or how little you are willing to donate, every dollar counts towards finding a cure for Castleman Disease!
~ REGISTER to RIDE with Team Castleman Disease WITHOUT Fundraising~
Registration Only - (must be 16 years old or older to participate as a cyclist, see liability wavier)
$60 before March 31st (Reminder that registration has jumped to $80 Please register soon to take advantage of the lower price.
$80 from April 1st to June 1st
$100 day of event
Each registered cyclist will receive a complimentary event T-shirt. Preferred size is guaranteed for all who register prior to April 20, 2019.
~REGISTER to RIDE with Team Castleman Disease WITH Fundraising~
(must be 16 years old or older to participate as a cyclist, see liability waiver)
Registration fee: $25 and requires a minimum fundraising commitment of $250 (minimum must be met by June 8th, 2019
Fundraising cyclists will receive a complimentary professional-style cycling jersey designed to commemorate the 5th annual event! .
As you register, PLEASE affiliate with Team Castleman Disease, so that 100% of your registration fee will go to finding a cure for Castleman Disease.
~Volunteers~ Volunteer Registration is now OPEN for the day of the ride! Volunteers are needed for various tasks throughout the day, starting from 6:00am and ending around 4:00pm.
There is no cost for volunteers to participate, but must sign a liability waiver and be 18 year old or older.
Volunteers are needed for the following: start/finish area, course marshals, aide stations personnel, ride leader/sag support. All volunteers who register before April 20, 2019 will be provided a t-shirt of the desired size at the time of registration. A limited number of t-shirts will be available for those who sign up after April, 20, 2019 and will be provided at the time of check in on a first come first serve basis. All volunteers will be provided a coupon for access to the post event meal.
Registration is still OPEN for our RARE Patient Advocacy Symposium! It’s very important to have representation from our MDBR captains, families and cyclists at the symposium. The agenda is built around topics that are geared specifically towards the patient community, and keeping Castleman Disease wants, needs and interests top of mind. Please consider joining us on May 19th for an opportunity to learn from rare disease experts, and meet families and researchers involved. For reminders about the Symposium please visit: MDBR Facebook Page and Twitter.
We thank you for your ongoing support. If you have any questions, please feel free to email or call Patty Prazenica, firstname.lastname@example.org (919)605-2928 or
Mileva Repasky, email@example.com (412) 860-8375.