We'd love your help getting the word out about our new website/research accelerator.
Below you will find resources to help let your friends and peers know about the Castleman Disease Collaborative Network (CDCN), including video, factoids, tweets/LinkedIn/Google+/Facebook updates and more.
Here are some tweets you can share to help spread the word.
- Tired waiting for progress for cancer/other deadly dzs? So was @CDCN_cure. Now they're leading the way towards a cure http://t.co/2FqJiXGttW
- Heard of the @CDCN_Cure ? They're solving a deadly disease w/ an innovative approach that will impact many diseases http://t.co/2FqJiXGttW
- Looking for some inspiration? This team of patients & physicians/researchers joined to solve a deadly dz castlemannetwork.org @CDCN_Cure
- Click to share on Google+ (and feel free to add one of the above messages)
- Click to share on LinkedIn (and feel free to add one of the above messages)
While you're at it, follow us on Twitter:
The Castleman Disease Collaborative Network (CDCN) – a global network of physicians, researchers, patients, and loved ones that is accelerating research and treatment for Castleman disease – has launched a new website at www.castlemannetwork.org. The CDCN is taking an innovative approach to tackle this rare and deadly hematologic inflammatory disorder that involves global collaboration, investments in high-impact research, patient engagement, and strategic partnerships. Check out their website at www.castlemannetwork.org #CastlemanWarrior #RareDisease @cdcn2
Here are some tidbits about the CDCN:
What is it? A collaborative network of patients, loved ones, physicians, and researchers dedicated to accelerating research and treatment for Castleman disease - a deadly, hyper-inflammatory hematologic disorder.
Who is behind it? A team of physicians, researchers, MD and MBA students, patients, and their loved ones have joined together to lead the CDCN. David Fajgenbaum and Frits van Rhee co-founded the CDCN along with CARE co-founders, Greg and Charlyn Pacheco.
What can I find at www.castlemannetwork.org? For patients/loved ones, we provide up-to-date information on Castleman disease, tools to connect with others, and opportunities to fight back against Castleman disease by funding essential research projects. For physicians/researchers, we provide up-to-date research findings, a platform to connect with others, and strategic grants. For others, we provide interesting content about research acceleration and information about applying the CDCN's principles to other diseases and initiatives.
Why create the CDCN and this website? Patients are dying as they faithfully wait for medical research progress to be made, but it moves far too slowly, inefficiently, and randomly. We're building collaborative partnerships, identifying strategic priorities, connecting all stakeholders, and jockeying research forward to save lives!
You can embed the below video into any webpage.
Here's how to use the video:
Copy and paste the following code into your HTML:
<iframe width="560" height="315" src="//www.youtube.com/embed/YzTvBLYQ8gk?rel=0" frameborder="0" allowfullscreen></iframe>
Or use the following link: https://www.youtube.com/watch?v=YzTvBLYQ8gk
Please feel free to use the following images in blog posts, social media shares, or any other way: