"Beating Castleman's, Together" Patient & Loved One Summit


We are pleased to announce that the CDCN will host its fourth annual Patient & Loved One Summit in Philadelphia, PA on September 15-16, 2017! The summit will enable patients and loved ones from around the world to connect with one another and learn about their disease, up-to-date research, and ways to join the fight to advance research and treatments.

We will recognize the 2017 Jim Johnston Castleman Warrior Award winners. Please nominate this year's Castleman Warrior award winners in the following categories: Patient of the Year, Loved one of the Year, Physician of the Year, Researcher of the Year, and Community Member of the Year by clicking here (nominations due by August 10). 

Location: Philadelphia, PA. Exact location to be determined. 

Hotel: Sheraton Philadelphia University City Hotel (3549 Chestnut St., Philadelphia, PA 19104) - We have arranged for a special rate of $145 per night for a limited number of rooms from Sept 14-16. You can make your reservation by calling 215-387-8000 and ask for the "CDCN" rate or visit: https://www.starwoodmeeting.com/Book/CDCN17. The deadline for making your reservation at this special rate is August 14 at 5pm EST. 

Register for the Summit (or just express your interest if you're not yet 100% sure you can attend): Click here! Deadline for registration is September 4, 2017 by 5pm. 

Travel grants: We do not want cost to be a barrier for Castleman disease patients to attend the 2017 Patient Summit in Philadelphia. Therefore, we have put aside a limited amount of funds to assist with the cost of travel and lodging. If you are selected for a grant, you will still need to book your own flight and hotel and we will issue you a check to reimburse you after the event for up to $500. We have a total of 25 grants of $500 to award. Please note that only patients who have received a diagnosis of Castleman disease plus one loved one may apply (so the patient would get a $500 travel grant and the loved one could get a $500 travel grant too). If more than 14 patients apply, grants will be preferentially awarded to patients before loved ones. Spots are limited. Please apply by August 10. Click here to apply! 

Tentative schedule for the 2017 Summit:

Thursday, September 14 - Arrive in Philadelphia Thursday evening since the Summit begins first thing on November 4th.

Day 1: Friday, September 15 from 8:00am-5:00pm

  • Informational sessions
  • Patient connections
  • Opportunities to contribute to current CD research (blood sample)
  • Patient engagement workshops
  • Q&A with expert physicians
  • Quest for a Cure Gala

Day 2: Saturday, September 16 from 10:00am-12:00pm

  • Tour of Philadelphia

Arrange travel to leave Philadelphia on the afternoon of September 16.