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Welcome to your Castleman disease home. Castleman disease is a journey for patients and all those that they love that begins with a difficult diagnosis, followed by finding a specialist, choosing a treatment, recovering, and surviving. You don't have to face this alone--we're here to help! The CDCN and this site exists to provide resources and information to help you and/or your loved one effectively navigate each step of the journey.

A checklist for newly-diagnosed patients and those they love:

LEARN ABOUT CASTLEMAN DISEASE

Learn about your disease – knowledge is power! These pages contain the basic information you need to know about Castleman disease. Read more »

FIND A TOP TREATING PHYSICIAN

Due to its rarity and difficulty to treat, your oncologist may not be familiar with cutting-edge treatment options. The CDCN has assembled a global database of physicians who are experienced at treating Castleman disease. Find a physician near you! Read more » 

If you are not able to visit an expert, consider sharing articles and resources from our website and newsletter about cutting-edge treatment options with your physician. You deserve the best treatments and care available. Read more  »

HELP FIND A CURE!

Castleman disease patients and their loved ones can help cure the disease in 3 ways: raising awareness, raising funds for research, and contributing their patient information to the CDCN ACCELERATE Natural History patient registry and/or donating blood samples or lymph node tissue samples to the CDCN BiobankWe call patients and their loved ones who fight back "Castleman Warriors"! Read more »

DONATE TISSUE SAMPLES FOR RESEARCH

Let us know if you would be interested in getting your samples sent to us for use in high-impact research studies! Fill out this quick survey to let us know what your doctors might have available. Donation Survey »

CONNECT WITH OTHER PATIENTS

Meet, ask questions, and share experiences with other patients and loved ones through the RareConnect patient forum. Read more »

BECOME A CASTLEMAN WARRIOR!

Castleman Warriors help organize events in their communities to raise awareness and funds to fight back against the disease. Learn more »

DON'T FORGET TO CHECK OUT OUR RESOURCE PAGE!

We have a huge list of resources including financial assistance, transportation, support groups and more! Read More »