Castleman disease is a journey for patients and all those that they love that begins with a difficult diagnosis, followed by finding a specialist, choosing a treatment, recovering, and surviving. The CDCN and this site exist to provide resources and information to help you and/or your loved one effectively navigate each step of the journey. Read about out how Castleman disease patients and loved ones are fighting back against this disease here. Together, we will beat this disease.
A checklist for patients and those they love:
Get easy to understand information about Castleman disease diagnosis, classification, symptoms and treatment. Read more »
The CDCN has assembled a global database of physicians who are experienced at treating Castleman disease. Find a physician near you! Read more »
Castleman patients and their loved ones can help cure the disease in 3 ways: raising awareness, raising funds for research, and contributing their patient information to the CDCN patient registry (not yet available) and/or donating tissue to the CDCN Biobank (not yet available). We call patients and their loved ones who fight back "Castleman Warriors"! Read more »
Let us know if you would be interested in getting your samples sent to us for use in high-impact research studies! Fill out this quick survey to let us know what your doctors might have available. Donation Survey »
Meet, ask questions, and share experiences with other patients and loved ones using the RareConnect patient forum. Read more »
Castleman Warriors help organize their communities to raise awareness and funds to fight back against the disease. Learn more »
The CDCN is proud to have connected with over 10,000 patients and their loved ones since 2012. Although having a rare disease can be isolating, the CDCN is working hard to foster a global community of patients. Check out the CDCN community of Castleman disease patients around the world!
Help us fund high-impact research objectives. Learn more »
Patient Lisa Verboomen from Seattle, WA shares her experience with Castleman disease at the first-ever "Beating Castleman's, Together" Summit, hosted by the CDCN:
Chris Kimura from Sandy Oak, CA talks about his experiences with multicentric Castleman disease at the "Beating Castleman's, Together" Summit: