Jim Johnston is the Founder & Executive Director of the International Castleman Disease Organization. He founded the organization and its website in 1990 as a means of communication for Castleman disease patients, physicians, and family to provide medical literature, a means of communication, and research on this very rare disorder. The concept behind starting an interactive patient advocacy network came after his own experience with Castleman disease in the late 1980’s, when he was diagnosed with a mediastinal mass, which was later documented as the Hyaline Vascular Variant of Castlemans Disease.
Over the last 24 years, Jim has revolutionized the support provided to patients and helped countless Castleman disease patients and loved ones.
On behalf of all patients and loved one, we'd like to thank Jim Johnston for getting us to where we are today by being the first Castleman Warrior.
Visit the International Castleman Disease Organization on Facebook at: https://www.facebook.com/groups/48343887930/
Visit the International Castleman Disease Organization's website at: http://castlemans.org/