Do you treat any patients with Castleman disease? Have you treated any Castleman disease patients who are now deceased?
The Castleman Disease Collaborative Network (CDCN) is pleased to announce that we are collaborating with Principal Investigator Dr. David Fajgenbaum and other researchers at the University of Pennsylvania (Philadelphia, PA) to build the ACCELERATE registry to learn more about Castleman disease. Participating in this study as a patient will entail completing a consent process online or by telephone and authorizing medical records to be sent from patients’ doctors and hospitals to researchers at the University of Pennsylvania. Patients will also have the option to complete a brief survey online every 3 months. Deceased Castleman disease patients may also be included. Through these studies, researchers hope to find new ways to detect, treat, and maybe prevent or cure this disease.
We encourage physicians treating Castleman disease patients involved in the ACCELERATE registry to independently report all observed adverse events in accordance with local regulation. Please see the US FDA Adverse Event Reporting System (FAERS) for more information.